Almost being dead was surely not cool and I was far from ready for that.”Tyler just celebrated the one-year anniversary of receiving his new heart on December 2nd. The risk of coronary artery disease in a transplanted heart is similar for all patients.Life expectancy after a heart transplant depends a great deal on a person’s medical condition and age. While cardiac sarcoidosis is diagnosed in around 2-5% of sarcoidosis patients in the United States, recent studies are causing some experts to estimate that the number may be as high as 20-30% of sarcoidosis patients in the U.S. Read about two patient's experiences with cardiac sarc and heart transplants!FSR Ambassador Bob Goodman was diagnosed with cardiac sarcoidosis around March 2012. Because they suppress the body’s immune system, anti-rejection medications put transplant patients at high risk for infections.To catch rejection, infection and other possible complications as quickly as possible, transplant patients have frequent follow-up appointments with their care team. Athletics, competitive or not, can be at times humbling, so I knew what it was like to face a humbling situation.

A heart transplant is a surgery in which a failing or diseased heart is replaced with a healthier donor heart. I say “new normal” because nothing is ever normal again after a heart transplant. Yes, I was dying, but it could have been incredibly worse. Heart biopsies are done frequently in the months following surgery. To put it bluntly, one must remember that transplant is a “get out of death free” card, and one must do everything in their power to make the most of it.”Learn more about cardiac sarcoidosis from our past blogs:By checking the box below, you consent to receiving monthly email updates from FSR, as well as occasional additional announcement emails.This field is for validation purposes and should be left unchanged. The risk of rejection is also a constant concern when recovering from a transplant- Bob experienced rejection three weeks post-op. Like Bob, he also has a positive attitude and is determined to make the most of his second chance at life:“Everyone has a unique situation, but personally I felt rather lucky to have the sarcoid isolated to my heart. My diagnosis and physical recovery, while humbling, never overwhelmed me. I have truly been given a second chance at life and am living it as much as I can. After three years, routine biopsies typically are not necessary.Beyond rejection and infection, another possible complication of a heart transplant that can occur as time goes on is You mention that your father needs a transplant due to coronary artery disease. Life expectancy after a heart transplant depends a great deal on a person’s medical condition and age. After all, what could be a greater help than giving someone a new lease of life.

A heart transplant is a major operation that has significant risks. Life After Transplant. In general, though, statistics show that among all people who have a heart transplant, half are alive 11 years after transplant surgery. While there are several treatment options to help combat the effects of cardiac sarcoidosis, in advanced cases when a patient is experiencing heart failure a heart transplant may be considered. They both credit their past training and fitness with helping them in recovering from their transplants both physically and mentally.Now, five years post-transplant, Bob doesn’t let his transplant dictate his life. He was working as a Manufacturing Engineer in Pennsylvania, and he and his wife Abbey had two young kids, Ari and Lex, who were 1 and 3 years old at the time.After more testing and a misdiagnosis of a rare form of cardiomyopathy, Tyler was referred to Johns Hopkins where he was finally diagnosed with cardiac sarcoidosis.Both Bob and Tyler’s sarcoidosis was limited to their hearts. I was discharged 3 days later but subsequently became aware that it was not a matter of if, but a matter of when I would need a heart transplant.”“I spent the spring and summer adjusting to my life with sarcoid, resuming a relatively normal life.

After 29 years working in the United States military and a life of almost perfect health, Bud was diagnosed with cirrhosis. Barely two months later in May, Bob’s defibrillator started going off and his doctors first mentioned those two words that drastically altered his life.“That was the first time I heard the words “heart transplant” and what was said was that they were going to evaluate me for one. They are needed less often as time goes by. In general, though, statistics show that among all people who have a heart transplant, half are alive 11 years after transplant surgery. Intense doses of IV prednisone were able to save him and he hasn’t faced any further rejection complications since.Both Bob and Tyler were active athletes before their transplants: Bob was an endurance athlete, including long-distance running, and Tyler played multiple sports and trained in martial arts. Maintaining a proper diet, staying as physically and mentally active as possible, staying positive at all costs and being receptive to the care are all things that I feel helped me.

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